Compendium
of CLM Resources
and Tools
This technical guide may inform civil society organizations at the grassroots and other levels
Resources
Links
Tools
Trainings
Tools for collecting data within CLM can vary largely depending on a number of factors. It can be some specifically designed CLM data collection tools, it can be software, developed specifically for CLM, or general data collection methods (eg. interviews, focus groups, observations, etc.) and their corresponding tools (interview guides, etc.). We cover this in more detail in our training module on Basic Notions of CLM and in the Datacollection for CLM guide that will be both soon availbale on out website. Below we provide some of the most common and publicly available and accessible options that can be used in your work.

MODELS

CTO

WHAT IS A COMMUNITY TREATMENT OBSERVATORY (CTO)?

A community treatment observatory (CTO) is a mechanism that systematically and routinely collects and analyzes qualitative and quantitative data. This data is used for monitoring trends along the HIV care cascade, and to inform targeted action that will improve the quality of HIV services.

In a CTO, an organized group of community members—such as a network of people living with HIV—collect data on various aspects of HIV prevention, testing, care, and treatment services. This can include, for example, indicators on the number of HIV tests conducted in a specified area, or the frequency and duration of ARV stock-outs experienced in a certain time period.

CTOs are a systematic and continuous monitoring process. Data is collected at set intervals (e.g. monthly), and entered into a centralized database.

Structure of a CTO The basic structure of a community treatment observatory includes five basic components:

1. Implementing Network.
2. Focal point person.
3. Data collection sites.
4. Data collectors.
5. Data supervisor.
6. Community consultative group (CCG).
7. Academic institution.

SOFTWARE SOLUTIONS

ReACT

REAct system (“Rights-Evidence-Action”), which allows to record violations of the rights of key populations vulnerable to HIV and tuberculosis (TB) and to response to them. Every case of human rights violation, in particular incorrect treatment of law enforcement officers or health institution, violence, disclosure of HIV status or refusal to provide medical services, or their incomplete or poor quality – violates the rights of a person to a dignified life and has a negative impact on the effectiveness of measures to combat the spread of HIV/TB in the context of prevention and treatment.

One Impact

“OneImpact is a digital platform made up of three tools that work together to provide a comprehensive community engagement, community empowerment and community-led monitoring solution.

Downloadable mobile application for people affected by TB: It provides people affected by TB with information on TB, their rights, and TB care and support services. It also provides spaces for people affected by TB to connect virtually and to report challenges for a rapid response and resolution.

First Responder Dashboard: It allows first responders to track, coordinate, and mobilize a response to the challenges reported. 

Accountability Dashboard: A platform for community advocates and other stakeholders to monitor and analyse trends on TB challenges and to generate CLM reports for advocacy, action, and programmatic change.

OneImpact TB CLM is currently operational in 26 countries.

OneImpact Conceptual and Implementation Framework

TOOL DESIGNED TO HELP YOU CHOOSE THE RIGHT TOOL FOR YOU

CLM Tool

On this page, you will be able to choose the best tool for your community group, which contains the appropriate collection method for this CLM, according to your questions and advocacy goal. Also, this web tool will help you assess whether the tool you have chosen matches the time, financial and human resources that your group currently has.

 

PEPFAR SOLUTIONS PLATFROM

DATA COLLECTION

Facility Manager Survey

The Ritshidze (meaning “Save our Lives” in TshiVenda) Project is a Community-led monitoring system was developed by people living with HIV and activists to improve overall HIV and TB service delivery. Community groups that implement the Ritshidze Program in their communities could interview facility managers using this 17-question observational survey in order to understand the quality of HIV and health care service delivery.

Patient Survey

Community groups that implement the Ritshidze Program in their communities could interview clinical patients using this 24-question observational survey in order to better understand the quality of available HIV and health care services.

Social Harms Reporting forms

HIV Self Testing (HIVST) Implementation under STAR includes active social harm monitoring at the community level. Self-testers are encouraged to report any incidents of social harm directly to community stakeholders or community – based distribution agents (CBDAs). This document is made up of three different appendixes: Toll-free Helping Social Harms Reporting Form, Social harms and Adverse Events Grading Guide, and a Distributors Social Harms Tracking Form.